For those of you that have gone through a Dementia and/or Alzheimer’s journey once I am going to say I know that it can be a challenge, because we have been through that and we understand the challenges. We aren’t going to say that we know what you went through because every journey is different, and we have seen that. What we have been through is two different journeys and both of them have been so different.
The dementia/Alzheimer’s journey is going to be different for everyone because there are signs that we may have missed and different routes that this journey is going to take moving forward. I know for example we have gone through two journeys, and both have been entirely different. We went through a journey through Covid that was extremely fast, and it went from first being diagnosed with dementia in a March and then losing my dad in the January of the next year.
The first diagnosis was frontotemporal dementia (FPT) and that is something it can happen rather quickly and that is what we experienced. We went from having a dad that was able to manage his life and understand all the different things to someone that wasn’t able to understand that we were there visiting him. My dad was always hungry no matter what much food he had because his system wasn’t able to communicate to itself that he had food, so he just wanted to keep eating.
The second diagnosis of dementia wasn’t fullly diagnosed until very later in the journey because no doctor wanted to say that my mom had dementia because that was something they didn’t want to sign on a dotted line about. The basic thing we heard was given my mom’s age she was just old, and all the symptoms pointed to her age. What is funny about all of this is during all this my mom was living on a memory care floor which was for someone that had dementia or cognitive impairments. She hadn’t been diagnosed formally with any of this until I had to talk with a geriatric nurse who finally said that yes, mom had dementia, and it was recorded as a formal diagnosis.
I had been fighting through the system to figure out what was wrong with my mom because no one wanted to say yes, she had dementia/Alzheimer’s even through she was showing all the signs. If someone is put onto a memory care floor in a senior’s care residence, make sure you ask a lot of questions because they are there for a reason.
One thing to be aware of is that if someone is getting a lot
of medial assistance make sure you have got the written/official diagnosis as it can make a big
difference with regards to income tax. This at least applies to those living in
Canada.
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